Always look on the bright side of death.
Every day I try to stay positive and look at the good things that have happened:
- I can walk without a cane now, I don't need a wheelchair anymore
- My CRP levels have steadily gone down without the help of antibiotics or anything
- My hemoglobin levels have stayed the same and not sunk, which is great, I'm still anemic, but not that much at least
- I can eat and drink without any problems
- My legs and hands aren't as swollen as they were
- I have regained the use of my right hand, which is amazing
But.
Still I can't help but be afraid of what they might find in theiir biopsy of my small intestine. Do I have cancer? What if I have cancer? Do I need chemo?
I'm 23 going on 24, can I even be released from hospital for my own birthday party or do I have to stay here that long.
Will I live to see the day that I turn 30. Will I ever have children and see them grow up. I would love to have children, I want to see them grow up. I don't want to be under 30 with a deadly disease.
Who would even want me? Who would be so sick in the head that they would want to fall in love and marry a woman who's always sick and might die and leave them a single parent?
These questions keep running through my head and I cannot shut them down. I wish I could. I wish I could just have an off switch for thoughts like that, but I don't. I try my best to be happy and positive but I'm so afraid and feel so alone in the evening and just want to fall asleep and wake up healthy and above all NORMAL.
Transplant patient with all kinds of worries from hospital fear to dieting, and loads about good music, tattoos and rock n' roll!
Showing posts with label death. Show all posts
Showing posts with label death. Show all posts
21.11.14
13.5.14
The Loss of the Great Giger
Okay this is a super quick post but let's just take a second or preferably some hours to remember the great, the one and only H.R. Giger.
2.1.14
Theme Day: Classic beauties - Mata Hari
Mata Hari was the stage name of one of the most known Dutch women of all time. She was born in 1876 but died already in 1917 (by death of firing squad) in France after being convicted of espionage for Germany in the first world war. She was an exotic dancer slash spy slash amazing beauty.
All photos from Tumblr.
All photos from Tumblr.
Tags:
classic,
classic beauty,
death,
death penalty,
dutch,
exotic dancer,
mata hari,
spy,
theme day
1.1.14
Till my head is filled with them
During the following month I'll be seeing doctor's till my head is filled with them. I don't know really how I'm going to survive it all, since I have to write those essays as well and clean out my flat in Tampere at the same time. Half of the doctor's visits aren't even mine, they're my dad's, and I'm really nervous for him, because I'm so afraid they'll give him bad news and worse news. I hate this whole situation so much I can't even describe it.
Thankfully my trip to the hospital went better than I hoped, and now I have enough everything to last me till my shrink's visit. I have sleeping tablets, because I haven't been able to sleep very well in the last few weeks, probably a side effect of some other pill I'm taking - hard to tell which since I take so many and most I can't stop taking. Well actually all of them are pills I really shouldn't stop taking, otherwise it's either death or horrid pain.
I'm feeling less depressed at the moment, I've gotten to go shopping and driving and everything and it's been fantastically frightening but so enlightening. I even drove with Billie at the back, that was fun! She loves being in the car, didn't want to come out anymore!
We should really go on a longer trip with her and my dad. Take her out a bit more since she obviously enjoys it.
I've also been thinking about my relationship issues. I am in a relationship, I can't deny that, I'm not really single and though I really really believe one shouldn't date ones ex, I am doing exactly that. And I think it's right thing to do for me and it feels right and good and I really love him. With all my heart, I know I love him. It's a weird feeling, because we're so temperamental the both of us, that if there's a fight, there's a real fight and both give up on the whole relationship thing, but he, he's been fighting for me for a year, he's shown me such commitment that I have no reason to doubt that he wants to be with me more than anything else.
It's also easy, since he's amazingly smart, has a good sense of humour, reads a lot, writes and his mum is awesome!
But now I should really get on with that essay writing, because otherwise I've lost a whole day again to other things.
Thankfully my trip to the hospital went better than I hoped, and now I have enough everything to last me till my shrink's visit. I have sleeping tablets, because I haven't been able to sleep very well in the last few weeks, probably a side effect of some other pill I'm taking - hard to tell which since I take so many and most I can't stop taking. Well actually all of them are pills I really shouldn't stop taking, otherwise it's either death or horrid pain.
I'm feeling less depressed at the moment, I've gotten to go shopping and driving and everything and it's been fantastically frightening but so enlightening. I even drove with Billie at the back, that was fun! She loves being in the car, didn't want to come out anymore!
We should really go on a longer trip with her and my dad. Take her out a bit more since she obviously enjoys it.
I've also been thinking about my relationship issues. I am in a relationship, I can't deny that, I'm not really single and though I really really believe one shouldn't date ones ex, I am doing exactly that. And I think it's right thing to do for me and it feels right and good and I really love him. With all my heart, I know I love him. It's a weird feeling, because we're so temperamental the both of us, that if there's a fight, there's a real fight and both give up on the whole relationship thing, but he, he's been fighting for me for a year, he's shown me such commitment that I have no reason to doubt that he wants to be with me more than anything else.
It's also easy, since he's amazingly smart, has a good sense of humour, reads a lot, writes and his mum is awesome!
But now I should really get on with that essay writing, because otherwise I've lost a whole day again to other things.
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from Tumblr |
12.12.13
9.12.13
Having to put down your best friend
My collie was born in August 2001, she was my saviour in a way, because I had been diagnosed with my heart condition only a few months earlier. I had always wanted a collie, but that was when my mother decided it was time I got what I wanted. Her name is Headstyle Can Can or as we like to call her: Bali. Yes, like the island. But mostly it's from ballerina.
I'm not really in a good mood today, we went shopping with my dad, but that only perked me up a bit.
I cried like a baby when the vet came, and I made my dad take our bernese away so she didn't have to watch.
I had to do this decision. She was old. She had arthritis, bad arthritis. She had a bad stomach and getting her to the shower was so painful for her that induced fear in her. Fear against me. Against the one person who always always loved her and was mostly never angry with her, even when she peed in my bed a few times...
I loved her through everything, and I will always love her. She was definitely my comfort and joy, though her life slowly drifted into something very different from comfort and joy. I just hope she's happy in doggy heaven <3
I'm not really in a good mood today, we went shopping with my dad, but that only perked me up a bit.
I cried like a baby when the vet came, and I made my dad take our bernese away so she didn't have to watch.
I had to do this decision. She was old. She had arthritis, bad arthritis. She had a bad stomach and getting her to the shower was so painful for her that induced fear in her. Fear against me. Against the one person who always always loved her and was mostly never angry with her, even when she peed in my bed a few times...
I loved her through everything, and I will always love her. She was definitely my comfort and joy, though her life slowly drifted into something very different from comfort and joy. I just hope she's happy in doggy heaven <3
7.12.13
The day that my mother died
My mother was an absolute survivor. The first time round. She got ovarian cancer when I was still quite young, so I didn't really know what was going on, I didn't really bother myself with it and I had all my kid things to do so I was really out of the loop. Not to forget that I have forgotten most of my childhood, there are huge gaps in my memory. But I remember she was a survivor. She was tough enough to get through one of the worst cancers for women and stay strong afterwards. She always was a tough lady, beautiful, kind, caring and never would show her toughness, but it was on the inside. She was mentally strong. An absolute survivor.
But then came the second time. It started with a horrible pain in her back, and as a doctor, she immediately thought that it might be kidney stones or something similar. She had been without cancer for over five years and that mark was something that for most people meant they wouldn't get the same cancer again. So she never considered the possibility of having ovarian cancer. Again. Without a womb or ovaries.
The pain was caused by a massive tumour that was blocking the tube between one of her kidneys and her bladder. Then they noticed the other tumours. All of them. They had probably started in her stomach lining and metastasised from there. But she was tough, tougher than ever, she went through chemo again, she went through every possible cancer treatment available and out of all the pain and suffering and side-effects the medication caused her, she never showed a sign of giving in to it.
She even went to work for all the years between 2003 and 2008 with metastasised cancer and working tougher than ever to get her goal: work for long enough so her pension wouldn't diminish. Because here, her pension is what is halfway left for the living after someone passes away.
My mother knew after a few years that she wasn't going to survive this one, she didn't tell it in the beginning, but after about four years she told us, me and my dad, that she's sure it will not be cured. Because they had gone through all the best chemo medication in the beginning, and nothing had really worked, then they had started with all the older, less effective drugs to try and cure her, but nothing worked. Everything worked partway, but not enough to kill the damned cancer cells.
In 2008, even I got pretty sure she wouldn't survive it. She didn't look happy anymore, she was bullied by her own mother who mostly relishes on other people's misery, and my mother didn't have the strength to say no, shut up, go to hell, to her own mother. I saw her go from the best and brightest and strongest, to the best, brightest and sadly the weakest. She was beautiful to the end, but she wasn't strong anymore. Then in August 2008 she stopped working and got on full time medical leave. I didn't see her much for those months. She was taking a lot of painkillers but she was still in absolute agony, and her inner strength didn't allow me to see her like that. At least, I think that's the reason. She let my dad see her, but it wasn't a surprise, they were always meant for each other - true soul mates. But for me, it was different. I was her only child, a child that doctors had for years told her she could never have. So she didn't really let me see her like that.
On December 6th 2008, my mother collapsed trying to get downstairs. We called an ambulance and she was sent to the Women's Hospital in Helsinki. She had two pulmonary embolisms, she could hardly breathe. My father drove to the hospital after the ambulance and stayed there the night. I took my bike the next morning and went as fast as I could to get a bus to Helsinki so I could see her again.
I don't know if we thought of it, but I know I was afraid she might die before I get to see her, so I had to run from the tram to the hospital. She was smiling, and she hugged me, and I didn't remember to say I love you mom to her, and I regret that so much. Because that evening, when we had left the hospital and my dad was about to call the ward to ask how she was doing, the phone rang.
They told us my mother had passed away. She had died in her sleep. A peaceful death with no pain. I collapsed against the oven in our dining room crying and my dad sat down beside me and cried as much as he had never cried. Then we drove to the hospital to see my mother one last time. I couldn't touch her. I stood right next to the bed, and wanted to hold her hand, to hug her, to say I love you, but I couldn't. I just cried. We both did, but my dad had more strength than I did and hugged her.
My mother died in her sleep on the 7th of December 2008. Exactly seven days before my 18th birthday. I will never forget it. And I don't think I should.
She was the most marvellous women I have ever met, beautiful in every way imaginable and that's how I will always remember her. The woman who smiled through the pain, through embolisms, the woman who showed me I could be strong as well, and taught me right from wrong and showed me the way to be a kind, loving person. She was my idol. Though a daddy's girl, my mother is my ultimate idol, and I love her forever, God bless her soul.
For God hath not given us a spirit of Fear, but of Power and Love and of Sound Mind.
But then came the second time. It started with a horrible pain in her back, and as a doctor, she immediately thought that it might be kidney stones or something similar. She had been without cancer for over five years and that mark was something that for most people meant they wouldn't get the same cancer again. So she never considered the possibility of having ovarian cancer. Again. Without a womb or ovaries.
The pain was caused by a massive tumour that was blocking the tube between one of her kidneys and her bladder. Then they noticed the other tumours. All of them. They had probably started in her stomach lining and metastasised from there. But she was tough, tougher than ever, she went through chemo again, she went through every possible cancer treatment available and out of all the pain and suffering and side-effects the medication caused her, she never showed a sign of giving in to it.
She even went to work for all the years between 2003 and 2008 with metastasised cancer and working tougher than ever to get her goal: work for long enough so her pension wouldn't diminish. Because here, her pension is what is halfway left for the living after someone passes away.
My mother knew after a few years that she wasn't going to survive this one, she didn't tell it in the beginning, but after about four years she told us, me and my dad, that she's sure it will not be cured. Because they had gone through all the best chemo medication in the beginning, and nothing had really worked, then they had started with all the older, less effective drugs to try and cure her, but nothing worked. Everything worked partway, but not enough to kill the damned cancer cells.
In 2008, even I got pretty sure she wouldn't survive it. She didn't look happy anymore, she was bullied by her own mother who mostly relishes on other people's misery, and my mother didn't have the strength to say no, shut up, go to hell, to her own mother. I saw her go from the best and brightest and strongest, to the best, brightest and sadly the weakest. She was beautiful to the end, but she wasn't strong anymore. Then in August 2008 she stopped working and got on full time medical leave. I didn't see her much for those months. She was taking a lot of painkillers but she was still in absolute agony, and her inner strength didn't allow me to see her like that. At least, I think that's the reason. She let my dad see her, but it wasn't a surprise, they were always meant for each other - true soul mates. But for me, it was different. I was her only child, a child that doctors had for years told her she could never have. So she didn't really let me see her like that.
On December 6th 2008, my mother collapsed trying to get downstairs. We called an ambulance and she was sent to the Women's Hospital in Helsinki. She had two pulmonary embolisms, she could hardly breathe. My father drove to the hospital after the ambulance and stayed there the night. I took my bike the next morning and went as fast as I could to get a bus to Helsinki so I could see her again.
I don't know if we thought of it, but I know I was afraid she might die before I get to see her, so I had to run from the tram to the hospital. She was smiling, and she hugged me, and I didn't remember to say I love you mom to her, and I regret that so much. Because that evening, when we had left the hospital and my dad was about to call the ward to ask how she was doing, the phone rang.
They told us my mother had passed away. She had died in her sleep. A peaceful death with no pain. I collapsed against the oven in our dining room crying and my dad sat down beside me and cried as much as he had never cried. Then we drove to the hospital to see my mother one last time. I couldn't touch her. I stood right next to the bed, and wanted to hold her hand, to hug her, to say I love you, but I couldn't. I just cried. We both did, but my dad had more strength than I did and hugged her.
My mother died in her sleep on the 7th of December 2008. Exactly seven days before my 18th birthday. I will never forget it. And I don't think I should.
She was the most marvellous women I have ever met, beautiful in every way imaginable and that's how I will always remember her. The woman who smiled through the pain, through embolisms, the woman who showed me I could be strong as well, and taught me right from wrong and showed me the way to be a kind, loving person. She was my idol. Though a daddy's girl, my mother is my ultimate idol, and I love her forever, God bless her soul.
For God hath not given us a spirit of Fear, but of Power and Love and of Sound Mind.
Tags:
beautiful woman,
cancer,
death,
depression,
die,
died,
dying,
mom,
mother,
ovarian cancer,
strength,
strong
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