A New Hospital Update

I thought I shoud probably write something about the last few weeks here, since I haven't really talked about anything in a while.
So my doctors still aren't sure whether the stuff the in my lungs is pneumonia or lung embolisms. Seeing as I have trombi (blood clots) in both my legs and two around my liver, it is possible I have something in my lungs as well.
I get treatment for that, heparin shots twice a day.

They've give up on antibiotics for a while, but my CRP is rising again, so at some point they may have to consider beginning some antibiotics again.

I had a BIC catheter in my right arm for a few days, but it caused a massive deep bruise (my entire right arm is purple-black) and it stopped working, so now I have a new CV on my neck. It's much more comfortable.

My whole body is covered in small bruises and small red dots, where blood has come out of a small vein. My left leg and my right arm aren't as swollen anymore as they were, but everything still hurts so much that I can't even describe it.
And I don't think I'm being treated with the right pain medication, But the pain doctor didn't come this week, so I have to wait till tomorrow or the day after or who knows how long till I see him and maybe get some changes to my pain medication.

Especially my right leg is now extremely painful, muscles hurt and feel like they've been in spazms and my ankles are really sensitive to touch.

My potassium levels were very low a few days ago, and before I came here to the Triangle hospital from Aurora, my hemoglobin was just 67 so I got five bags of blood! Five! Now my Hb levels are good enough so I don't need anything extra.

That's about it. I don't know more and neither do the doctors it seems.

Still alive - but still in hospital

I'm still here.
But writing is too hard and I'm in constant pain. I can't use my laptop since it's too heavy, so this will be short.

I don't have sepsis. I may or may not have pneumonia. I have blood clots, one in my leg, two around my liver and possibly some lung embolisms.

The reason why I'm still sane here because of my wonderful dad whose the most important person to me, my bestest friend Hanna whose been an an angel, and all my other amazing friends from school and the the blogosphere (I'm sorry Manette, I can't remember your blog's address...)

I've also gotten help from the psych department and they've been great to me.

Aurora, Aurora

Yesterday was a horrible horrible day. Just plain awful. I woke up in the morning with the most dreadful pain I've had thus far being here and big surprise (thank you effing painkiller hating Finland) I got nothing to help with the pain. I cried hysterically for two hours until I got a very tiny dose of oxycodone (not even enough to get half of the pain away) after which I was sent to a ear-nose-throat specialist. They found nothing new and sent me back to my ward.
I did get some new medications from them to help with the swelling and the infection, but pain? No nothing. I did manage to get paracetamol, which they love to give around here, thank the Lord above. IT IS THE MOST USELESS PAINKILLER EVER.

So, later, after again crying hysterically, I lost my IV, it started leaking. So they wanted to put a new one, but found no veins, so they decided I'd get a central line catheter. For that, they need to know how quickly my blood coagulates, so new blood samples. Again, no veins to be found. Had a panic attack.

They sent me to the catheter place, place the anaesthesiologist finally got some blood out and managed to answer the coagulation issue - and they gave me such enormous amounts of sedatives and strong painkillers (this white diazepine stuff and phentanyl) that I was in no pain whatsoever for the first time in weeks. I felt so bloody happy! When I was finally done with the catheter - which took about thrice as long as normal, since they put it in the wrong way first and had to correct it - I ate and drank so much I was actually full! I can't remember when I ate that much last! Seeing as I haven't been able to eat or drink for ages.

Now finally I'm getting oxycodone as pills during the day so I can eat and drink. They're not high doses, so I still feel the pain, but it's not nearly as bad as it was. And I'm getting both antivirals and antibiotics through the IV catheter, and the swelling has slightly subsided. So today seems to be a better day than yesterday. Yesterday was horrible.
But I managed to get some photos from outside, Aurora hospital is a relatively nice place, old but pretty on a little hill.

Day I: A week here already

I decided to start writing again with a new blog, since I have nothing better to do here in my hospital room. I am 22 years old, heart transplant patient, cancer survivor and now out of the blue sick again. With something. The doctors seem a bit puzzled.
I am also a young woman with a nice body form but that's where it ends. I am chubby, have been fat and due to both fat and high doses of cortisone, I look like a ninety-year-old woman under my clothes. Cellulite. Stretch marks. Huge huge stretch marks.
At the moment I weigh in at 69,2 kg. Which is for my height of only 162 cm way too much, and am hoping to lose (at some point in the future) 15 kgs.

As I am sick now, in hospital, not capable of moving much since I'm not allowed to, I won't exercise. And dieting is actually unbelievably easy right now, seeing as I can't eat really either. You see, my biggest problem is a horrendous pain on the side of my throat, neck and in my mouth. So food - no way can I eat food.

I've been surviving on juices, berry soups and weirdo nutricious drinks for the last five days, so I should be losing some weight soon.

I'm a university student and tend to put on weight when each school year begins, mostly due to alcohol, seeing as we party quite a lot. Luvvvv it.
Sadly it does nasty things to my body, so yeah....change coming now!

I'll be writing about both my weight issues and my medical issues here, and will be posting just random pictures as well (not of me though, keeping my pricavy for now). I will say I am writing from Finland, and Frankie really is my nickname.